Thursday, August 4, 2011

Ann had some great questions, here are my answers

Dear Suzanne, It has taken me several tries to finally be able to post a comment. I'm not blog savy but I do have an old injury from the '70s and now hobble around in pain unless I have a shot in my ankle or too many meds to walk a straight line. Hate the meds and prefer to take as few as possible.
I am scheduled for ankle surgery Oct. 14th and I am a nervous wreck trying to decide between ankle replacement or fusion.
How are you doing today? It's been four months. Are you driving? How long can you walk without needing a rest? I am supposed to walk 45 minutes a day for my back but cannot due to the ankle.
Are you constantly aware of the joint implant? How do you balance on uneven ground? That's one reason I don't want a fusion I have enough trouble with balance now.
Looking forward to hearing from you. You have a great blog and I love the photos. Thanks.
Ann in South Carolina


Greetings Ann and Everyone!  Ann brought up several good questions in her comment to my very first post, and rather than answer her in the comment box, I thought I'd answer here so anyone else that might have the same concerns could benefit from the answers.  So here goes....

You are a nervous wreck trying to decide between ankle replacement surgery and fusion:

You have every right to be nervous, confused, and/or unsure, and wrecked!  I was too, for a very long time.  Fusion was never an option for me though, for a couple of reasons.  I always had hopes of improving my ROM and I knew that with a fusion, it would never improve. The biggest drawback to a fusion for me, was that I knew that I would eventually end up with arthritis in the surrounding joints, and I simply wasn't willing to trade one problem for another.  If you decide to have a fusion, chances are great that you will end up experiencing arthritis pain in your toes etc, due to lack of motion.  I'm not saying that it would be a bad decision for you, because all of our circumstances vary....  I don't know enough about your situation and Lord knows, I'm not a doctor.  I'm just a happy patient!  From what I have gathered from fusion patients, the recovery is longer and more difficult, but again, that depends on circumstance and threshold for pain.

How are you doing today?

I am doing very well, far better than I ever expected.  Extremely thrilled with the outcome, pain is minimal at best.  I can honestly say that my ankle replacement has changed my life, or let me say that it has given me my life back.  One of the best decisions I have ever made.  No regrets, so far, whatsoever.  I am living a normal life.  Needless to say, that is awesome.

It's been four months, are you driving?

Ohhhhhh yes, I am.  My surgery was on March 15th, I started driving by the end of May, I believe.  I feel better driving now than I did prior to my surgery. I couldn't even stand pressing on the gas and/or the brake prior to March 15th.  I use my cruise control a lot less often now! :)

How long can you walk without needing a rest?

That's a tough question, because I've never really tested it by time.  Let me just say that I've walked the malls, carnivals, festivals, the streets, etc. without a great deal of pain.  Most recently I was in Lake of the Ozarks in an area with what seemed like a million stairs and steep inclines, hills, valleys, and more.  Does my ankle aggravate me?  Yes, however the aggravation does not hold a candle to the pain I've experienced in the past.  The pain that you are experiencing now.  My ankle aches, but I have very little swelling at this point in my recovery.  Most of the time I can walk like a normal person, I still turn my foot outward, it's a bad habit I've been trying to break.  There is still a limp, but not that noticeable....  steep inclines are my biggest problem, due to lack of dorsi flexion. I struggle on stairs as well. I believe that has more to do with my mind than my physicality.  I've walked on rocks, fields, and uneven surfaces with no great problem.  All is not perfect yet, but I'm getting there. Patience comes in to play here... my doctor recommended that I give myself a full year to recover.  I'm not even half way yet, and I couldn't be more thrilled.

I am supposed to walk 45 minutes a day for my back but cannot due to the ankle....

45 minutes a day would take some time to work up to.  That would be a lot to ask of a replacement or a fusion...  I wouldn't recommend doing that for at least a few months or more, following surgery.  Again, I'm not a doctor, but regardless of the surgery you decide to have, you must give it time to heal.  Lots of time. Personally, I think if I walked for 45 minutes straight right now, I'd be hurting.  Pain aside, I would be very worried that I might be putting too much stress on my precious implant.  I suffer from lower back pain and my family doctor prescribed Cymbalta.  It is normally prescribed for depression but is also prescibed for pain.  You might consider asking your doctor about it. It actually eliminated my back pain, but again, we're all different.  I've stopped taking it because it is so darned expensive, but really, throughout the time that I took it, my body was pain free.

Hate the meds and prefer to take as few as possible

I can tell you, without a shadow of doubt, that I have not taken one single pill other than a vitamin since March 20th, 2011.  Trust me, that is a huge deal since prior to my surgery I could not have survived the day without having taken at least six ibuprofen.  That alone, should speak volumes to you.  I have not taken anything, ANYTHING since March. I can only hope that all those years of pill popping hasn't caused too much irreversible damage.  The absence of medication is a true testament to the success of my ankle replacement surgery. 

Are you constantly aware of the joint implant?

Yes, I am constantly aware of my new implant.  But not for the reasons you might think.  I am not constantly aware of it because I feel the implant in there...  I feel like I have a regular ankle, really.  I am reminded when I beep at airports, and when I see my badges of honor...my scars.  The reason I am constantly aware of my implant is because I am extremely careful at all times of where I go, and where and how I step.  That can not be helped!  After years and years of excrutiating debilitaing pain, I do whatever it takes to protect my implant. I want to get as much life out of it as possible.  In addition, it's pretty pricey.  Certainly don't want to pay these bills again!  Yikes.  I'm up to about 65,000 and my insurance isn't so hot.  Fortunately, I have the STAR implant, so I won't have to have a total replacement down the road when it wears out.  I'll just have some parts replaced....that's a good thing!

How do you balance on uneven ground?

Carefully, that's all.  The innate fear of twisting my ankle keeps me on my toes, so to speak.  Normally I spend part of the summer in Canada with my family.  This summer, however, we collectively decided to skip it.  As beautiful as it is, and as much as we love it there,  it is loaded with dirt and rocky roads with huge pot holes, cliffs, hills, rocky beaches... it's even rocky in the water.  Thought it would be best that I remain on somewhat level ground until I am fully healed.  Instead we're stuck here in Missouri sweating out the ridiculous heat wave that never ends.  By the way Ann, and everyone, weather no longer has an effect on my ankle!  I used to be able to predict rain three days in advance, and low pressure days were a no-brainer!  Wow...those low pressure days were the most painful.  Proud to hang up my meteorologist hat, thank goodness I can no longer predict the weather.

So Ann, and everyone, I hope that I have satisfied some of your curiosity.  Ann, I am not very blog savvy either, I'm just trying to get this out there the best way I can because I remember how I felt when I had a zillion questions, but no answers...it was very frustrating.  The best advice I can offer you is...  do your research and be 100% certain that you are consulting with the best possible experienced surgeon.  I would not be where I am right now without my surgeon.  If you have trouble commenting you are more than welcome to email me, just scroll over to my profile and you will find my email there.  I've had many conversations on the phone as well, I'm happy to do that also.  Best of luck to you and I wish you all a pain free happy life!!


20 Weeks Post-Op... Woo Hoo!!

~Suzanne

6 comments:

  1. Dear Suzanne,
    THANK YOU!!!! What a great letter!! I have learned so much from your experience. Your warning about a fusion bringing on arthritis to the surrounding bones in the foot was new to me.
    My doctor is the best in Columbia, SC for TAR. He has been practicing for about 10 years and has done a dozen or so TARs but thousands upon thousands of fusions and foot surgeries. He says my bones are very strong and I am a good candidate for the TAR. I will double check to make sure he will be using the STAR.

    I love the fact that you feel like you have a regular ankle and that you are so happy with the TAR. It is rather amazing that you needed the pain meds for such a short time post surgery. Guess if I had to choose today, it would be the TAR. I look forward to the day when Ibuprofen will a pill of the past.

    Just this past April, I could barely walk due to severe stenosis of the spinal cord never mind the ankle. An x-stop was inserted and has solved the back pain pretty much but I am supposed to walk 15-45 minutes daily. I had worked up to 45 on an indoor track when my ankle shot wore off and I found myself walking on a toothache. I can see that it will probably take me a year to get back to that kind of walking. But any walking without pain is greatly desired.
    I broke my ankle many years ago (hate to say 40) and arthritis started to give me pain about 10 years ago. Now it is a total mess but only for another couple of months.
    Thanks again for all your help and happy walking,
    Ann in SC

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  2. Goodness, Ann, you have a lot on your plate with your back and your ankle. You still sound so positive and upbeat, which I find admirable. A positive attitude can do wonders for your recovery! :) I wish you the best, and hope that the outcome of whatever you decide to do, is a favorable one! Please stay in touch and let me know how things are going! Happy walking right back ya!

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  3. Glad to finally catch up with your blog and am delighted to see the ongoing exchange of valuable information, the original inspiration for this blog! Describing first-hand experience
    is often a most reliable source of information, so here's to continued healing and sharing! xo

    Michael

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  4. Suzanne and All,

    I have just reread this blog and I am reinspired (if there is such a word.) It contains very valuable information and encouragement for all of us, even if we are already experiencing our own TARS.

    I am 5 months out from my surgery and going to another check up with my Dr.in Iowa City on Monday. My big problem, because of a previously much smaller foot now with a TAR, is finding shoes to wear. I have two pairs, SAS sneakers and Ecco sandals with velco straps, brand names that are a reasonable fit. I use a shoe horn to put on the sneaker on my TAR foot.

    Also, I am recovering from injuring my hip (replacement) on the same side as my TAR when riding a very resistant recumbent bike in Canada a few weeks ago. It was painful to move, walk, but almost well now. I mostly rested when I could but I have not been walking as much as I should and using canes and a walker again. I was trying to keep my whole body toned and I enjoy the effects of some cardio exercise. My point being don't over do!

    My TAR feels great, no pain, but still swelling. I take a 400 mg. Advil in the morning. Remember, complete recovery is 6 months to a year.

    Driving is so much easier. Recently, I drove 900 miles+ solo, two days and one overnight with no problem.

    I am happy to be home, enjoying the creature comforts, and getting back on track to complete coverery.

    Thanks for this blog!

    Good luck, Ann, we hope to hear from you soon.

    Kay

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  5. Kay, I just wrote you a long letter and it got lost in cyber space. Phooey. Thanks for all the good advice. I sure hope my shoe size does not increase. I wear 12 3A shoes. Guess it will be sneakers for me henceforth!!

    I am hoping to set up a blog in the next week or at least before my surgery Oct 14th. It has been so encouraging to me to connect with you and Suzanne. You both inspire me!!

    Love and blessings to you both,
    Ann

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  6. Ann, I had difficulty commenting using Google. Mine also disappeared into cyber space. I now use Anonymous in the Select profile dropdown box and then sign my name. In the past I have written several long thoughtful time consuming comments only to loose them. I am looking forward to your blog.
    Thank you, Ann.
    Kay

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